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The
feelings
associated
with
an
Alzheimers
diagnosis,
can
leave
the
patient
feeling
devastated
and
overwhelmed.
Feelings
of
anger
leading
to
angry
"why
me?"
questions
are
common
to
sufferers
of
Alzheimers
disease.
Care
givers
of
those
suffering
from
this
syndrome
often
feel
powerless
and
like
they
have
no
idea
what
the
future
is
going
to
bring.
Since
Alzheimers'
care
can
last
as
long
as
20
years,
learning
how
to
cope
and
getting
educated
on
the
matter
is
important
for
the
5
million
patients
and
their
families.
One
of
the
problems
with
Alzheimer's
is
that
all
patients
present
with
different
symptoms
and
different
levels
of
progression.
A
few
people
with
Alzheimer's
will
do
things
like
attempt
to
drive
cars
without
knowing
how,
or
wander
off
unexpectedly.
Alzheimer's
disease
can
be
noticed
early
by
such
signs
as
misplacing
keys,
having
trouble
with
names,
and
becoming
irrationally
angry
without
remembering
why.
When
the
disease
progresses
to
its
final
stages,
a
patient
can
no
longer
recognize
family
members
or
friends,
or
even
talk.
There
are
no
hard
and
fast
rules
for
this
because
everyone's
case
is
different;
one
must
take
individual
situations
into
acccount.
(belongs
to
the
one
who
is
patient),"
according
to
Connie
Kudlacek,
who
previously
headed
the
Alzheimers
Association
Midlands
Chapter.
"Rather
than
thinking
about
the
worst
case
scenario,
we
should
concentrate
on
the
positive
aspects
and
look
for
way
in
which
to
nurture
their
individuality
and
offer
them
ways
to
succeed,
even
in
the
advanced
stages."
Professor
Jacquelyn
Frank
of
the
Ulndy's
Center
for
Aging
points
out
how
difficult
it
can
be
to
care
for
a
loved
one
with
Alzheimers,
as
they
gradually
seem
to
become
another
person.
She
characterizes
the
feelings
as
"anticipatory
grief."
This
relates
to
the
fear
of
losing
someone
before
they're
actually
dead.
Also,
there
is
"ambiguous
loss,"
the
conflicting
experience
of
taking
care
of
a
person
who
is
alive
in
body,
but
lacking
ability
to
function
socially.
In
Alzheimers
support
groups
to
maintain
positive
attitude
in
spite
of
such
isolation
and
hopelessness
the
airing
out
of
emotions
is
highlighted
by
Frank.
One
way
to
help
provide
adequate
Alzheimer
care
is
to
minimize
frustrations.
In
the
beginning
you
may
have
a
hard
time
trying
to
give
your
loved
one
a
bath
or
feed
them,but
as
time
goes
on
you
will
understand
their
natural
schedule
of
when
they
will
be
the
easiest
to
work
with.
You
should
produce
a
routine
to
have
more
predictable
manageable
day
for
Alzheimer's
patient
.
For
someone
caring
for
an
Alzheimer's
patient,
it's
useful
to
limit
decision-making
that
can
be
stressful.
For
example,
it
may
be
hard
to
choose
a
dress
from
a
closet
which
is
full
of
clothes,
whereas
a
choice
between
two
outfits
may
be
much
easier
When
caring
for
someone
with
Alzheimer's,
you
must
be
able
to
adapt
to
changes.
It's
difficult
at
first
to
get
used
to
the
mood
swings
of
the
Alzheimers
patient.
He
or
she
may
abruptly
refuse
to
eat
what
was
once
a
favorite
dish,
or
be
resistant
to
clothes
of
a
certain
color.
The
patient
suffers
from
blackouts
and
does
not
want
to
show,
but
insists
on
living
as
if
nothing
is
wrong.
Remember
that
in
cases
like
these,
the
individual
can't
help
this,
so
try
not
to
take
it
personally.
Try
not
to
use
a
too
blatant
or
obvious
approach.
If
it
is
hard
convincing
your
loved
one
to
change
his
clothes
everyday,
you
might
try
buying
several
sets
of
the
same
outfit
and
then
switch
them
while
he
is
showering.
Patients
that
have
either
cancer
or
heart
disease
may
require
3
to
5
years
of
care,
where
as
the
patients
suffering
from
Alzheimers
disease
may
entail
20
years
or
so.
The
gradual
deterioration
of
the
Alzheimer
patient
can
be
partitcularly
demoralizing
for
the
person
caring
for
someone
they
care
about.
Because
there
is
no
cure
for
Alzheimers
disease
learning
about
it
is
the
key.
The 36-Hour Day: A Family Guide to Caring for People with Alzheimer Disease, ...
Amazon Price: $11.53 Used Price: $9.49 Average Customer Rating: 5.0 Review (rating: 5): This book is full of information that has helped our family understand and support our family member who has memory problems.
The 36-Hour Day: A Family Guide to Caring for Persons with Alzheimer Disease,...
Amazon Price: $9.99 Used Price: $4.85 Average Customer Rating: 4.5 Review (rating: 3): I work in this field (dementia - helping families find housing and services) and I think this information does not always reflect what I know is true. For example, they make the whole area on diagnosing confusing and it could be simplified. It's either progressive or non-progressive dementia, and the physical being must be examined first to rule out causes for the symptoms of dementia, before the neurological testing begins. The housing information is truly out of date - people with dementia don't go to the psych. wards except perhaps in a small town that doesn't keep up with the times. There are communities and hospitals that deal with behavior problems - but the hospitals treat them and discharge them to facilities that specialize in dementia care - not pscyh. wards.
I think this is one book that has interesting information but it would be a crime to only read this book. Attend support group meetings at facilities, day care centers, and the Alzheimer's Association and learn from others who are caregivers and from those who are up to date.
Caring for People With Alzheimer's Disease: A Training Manual for Direct Care...
Used Price: $44.99
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